Today I spoke to Dr McDowell, who was so lovely. He needed to check with me Shaun's history, all the different things we tried regarding both the trigeminal neuralgia as well as the Aterial Venus Malformation....& believe me we have tried anything we heard of all over the country. I told him that I have spoken to Dr Vinnie Khurana, who is the only person who has opened Shaun's head and seen inside, who was at Canberra Hospital but is sadly now at Royal Melbourne, whom we happily travel to see. We discussed the long term options none are very comforting. We have some very hard decisions to make once Shaun is well....rather I should say, that Shaun has to make....it must be his decision.
Today too, I saw Shaun's head uncovered and was shocked to see his head is all stapled, when they had told us that they were to drill a small hole to put drainage through.....as you can see below, it seems a bit bigger than I had imagined!
Thank you to Shirley from the Alliance Church at Calwell where we have been attending for nearly 6 months, who came over last night, about 10pm (we got home very late) with a couple of meals for us. You have no idea how thankful we are. We continue to see God's hand on Shaun & the doctors and I thank you for your prayers. It means so much to all of us.